Recovery and Rebuilding

Understanding Methylation.

Understanding Methylation, an easy way

Best explanation I have found for a basic understanding of methylation and why it is important, especially in the context of mental illness and health.

Someone directed me to this post last week on the Metabolic Healing blog.  Turns out if you read elsewhere on this site, and know our children still have toxic copper levels, krypto, and low oxytocin, looking at DNA, it’s not hard to see we might be fighting methylation vs. disease.  I always struggle to really explain the whole mess to people so mostly I just don’t.  I pick the easy way and call it autism. Anyway, after reading this, from now on, maybe this is where I will point them for a more in-depth answer!

“Suppose you walked into your doctor’s office and he told you: “you look like you have cancer. We need to put you on chemotherapy medications immediately.” “What? How are you so sure, did you run any tests?”, you ask. “No” replies the doctor, “you just look like you have cancer”.  As insane as this situation appears, this is an example of how a diagnosis is made in conventional psychiatry. …”

Methylation

Methylation is a chemical process that occurs in every cell of the body. Methylation is essential for many critical functions such as DNA and RNA synthesis and expression, glutathione conjugation and synthesis, synthesis of neurotransmitters such as dopamine, serotonin, GABA. Proper methylation is also essential for immune regulation, including viral inhibition.

The implications with improper methylation is now being seen as causative triggers in several groups of disease processes, such as neurological inflammatory diseases like parkinson’s, alzheimer’s and autism. Autoimmune diseases such as MS (multiple sclerosis) lupus, and RA (rheumatoid arthritis) are strongly associated with epigenetic methylation mutations. For nearly 30 years, it has been known that cancer involves over and undermethylation.”

Metabolic Healing Website
Metabolic Health Key Integrated Functions

It’s worth reading.

Down the rabbit hole….

Some great conversations today, managed to get way more data crunching and information than the little I did at Genetic Genie the other day.  Now, now, I can see it, I can see it.  I can see where we were ALWAYS going to have a problem here.  Following on from yesterday’s post, the more I find out, the more it makes sense.  Now what to do, what to do. Well, I am waiting for someone who can help me move forwards with that, someone who has been there, who understands this stuff way more than me right now.

This is no magic wand, and this isn’t going to be straight forward, it’s certainly not as easy as taking 1 pill to fight the demons BUT this could very well, in the end, lead to a solution where the pills might just really not be necessary.

I think this has been my issue all along, NO ONE has been able to tell me why, or even what is happening to our son, all they can do is tell me is where we are going wrong, where we are failing, how we are losing the battle, they know they can numb ‘it’ away, whatever ‘it’ is, it may take many med combo’s and med changes but they can make it go away and he will function most of the time, he will blend with his peers… but is that enough, is it enough??

Today I have renewed hope, renewed vigor, I am sure we can figure out how to make a change following this path… stay tuned!

Morphism

-morphism, suffix meaning the “condition of having a (specified) shape”: amorphism, isomorphism, pedomorphism.

What now, I mean really what now…. last Sunday a breakdown and auditory hallucinations, a week spent in the hospital and we left with a new sense of urgency and a bottle of lamotrigine.   A recent evaluation has now suggested B could most likely be bipolar 1, although the therapist listed only as a rule out.  So one more to add to our ever growing list of letter disorders and comorbidities.  His depression was off the charts and his self loathing evident every single second of every day.  Finally, Sunday night he admitted that a voice in his head was very loud and telling him how useless, annoying, pathetic and worthless he is. My 9-year-old, my precious, beautiful, amazing 9-year-old is having paranoid thoughts and auditory hallucinations.  How did we get here?  I agreed to the medication because I just don’t know what else to do.  I want him to be well, I want him to be happy, I want to stop chasing things that don’t exist, I am beginning to believe a ‘cure’ isn’t out there anymore.  So the medication route it is.

Fast forward almost 2 weeks and my son is coughing, has a runny nose, itchy sore throat and isn’t feeling great, but he also has asthma and we live in city #5 on the list of worst allergen places to live.  Now I am freaking out that he is having a reaction to the lamotrigine and decide to err on the side of caution.  I took him to urgent care, they were unsure of how to titrate his dose so they called a psychiatrist, who told us it was okay to just stop it.  He has only been on it 2 weeks and his dose is very low, so stop it we have.  I am not even saying never again, but right now, my fear of Steven Johnson Syndrome is so high, I am willing to wait it out for a week or 2 before we get back on track.

In my desire to get him off the drug as fast as possible, I of course, hit Google!  Reading the stories of withdrawal made me more nervous than ever… so with that in mind, knowing that we have to wait it out a week or two for his current symptoms to subside before we try again, I once again am exploring the William Walsh, natural ways to get him more stable.   While searching for answers I also found another book that looks very promising entitled Healing Depression and Bipolar Without Drugs – I have already downloaded it to my Kindle!  I also went ahead and treated myself to some light reading (! :)) with William Walsh’s publication Nutrient Power 2012.  As I already have my 23andMe gene information in hand in regards to the MTHR gene (read this for more information on MTHR), I am fairly confident the answer lies within these three parts of the triangle – Food, nutrition and methylation.  Wish me luck as we embark on a this new fork in the road.

Bipolar in Children looks like…??

A great resource:  The Balanced Mind Foundation

Never ending ….

I rarely post anymore (and not just because it is so depressing), but also because I am working 40+ hours a week and have a family who demands 110% of my time, so no, the ability to sit and think for the time it takes to write a post is almost nonexistent.  I am up and at em this morning, ready to face the day, mostly because I have to go buy 2 dozen Easter eggs for the school egg hunt, filling little plastic eggs with treats that my kids are banned from eating and knowing full well that the hunt itself will increase stress levels and perpetuate the fight/flight mode my kids exist in.    On that note, I wanted to share a couple of books I have been reading of late, one is ADHD without Drugs, A Guide to the Natural Care of Children with ADHD by Sanford Nermark, MD.

Again, I am not advocating a drug free regime for anyone, choices we make are made with the information we have at the time, and I 100% agree that medication is a choice, one that while I have tried to stay away from it, has crept into our treatment in the past briefly and possibly will again in the future.  Never say never.  However, for now, we are still searching, hoping and praying that we can facilitate a change without medications, (even if this means that I get to sob for 30 minutes in my bedroom at night!!!).  Anyway, again I digress.

This book has so much information, gives an overview of the diagnostic approaches used, statistics, studies to  reference and great balance between traditional thinking and a more natural treatment approach.  Even the author concurs that for some, medication is sometimes the choice that has to be made and he even gives a brief outline of what and how it works.  However, reading through the pages it struck me that our negativity towards ADHD, PDD, ODD, etc., as a society is more crippling to our kids than the actual disorders they are being labeled with.  No one has the compassion or the time it seems to stop, take a deep breath, and see these kids for who they really are.  They are not an annoyance, not a ‘bad’ kid, but just a kid who maybe needs more help, more compassion and more direction than one who may be sitting besides them.  When did we become so intolerant of different?  When did a creative, inspirational, energetic person become so intolerable   As adults, the forward thinkers, the creative types, the out of the box thinkers move our world forwards, why would we try to cripple those thinkers at such a young age??

To gain a fresh or at least alternative perspective on how to understand these kids, this book should be handed to every single student teacher as soon as they enter college, and by the time they leave, this book and Heather Forbes’s new book (Help for Billy) should be dog eared and underlined by graduation (and you know I have a few more that given a chance I would add to the list, i.e, Bruce Perry etc. etc.).   There are just so many kids out there who need more, “… In 1970, about 150,000 American children were taking medication for ADHD.  This represented 0.2% of children (or 2 in 1,000).  By 2003, the last year for which we have reliable statistics, approximately 4.5 million children were diagnosed with the disorder, and 2.5 million, or 3.4% (34 in 1,000), were taking ADHD medication for it.  This represents a 16-fold increase in both the actual number of children taking medication and the percentage of medication use — a surge of 1,600%! …” page 6, Newmark, Sanford MD.  As you read further, we begin to understand that a simple 2 page questionnaire from a parent and a teacher in a PCP’s office can get your child diagnosed with ADHD in 2 x 15 minute conversations.

So something to chew on this morning while going about your daily tasks and dreading that phone call or that email, or your kid coming home again and kicking the walls, there is a positive way to look at this, eventually EVENTUALLY it will be our kids who conquer the world ~ if only they can remember just what it was they were doing!! 😀

Link between Lyme disease, ADHD and other Neurological disorders?

Driving to Tennassee this past Friday I was listening on Satellite Radio to the Doctor Radio channel, the guest happened to be Dr. Daniel J. Cameron (First Medical Associates, 657 Main Street, Mt. Kisco, NY 10549) an expert in Lyme disease and tick borne illnesses.  I listened with fascinating interest to what he had to say about Lyme disease.  I was personally interested, as since a diagnosis in Jan 2011 of Fibromyalgia, I have continued to struggle daily with joint pains, migraines, headaches, constant nausea etc. etc.  I had no reason to suspect anything other than firbromyalgia until I started listening to Dr.  Cameron, and how often Lyme and tick diseases are mistaken for other things.  Notably, for me, I have had 2 tick bites that I distinctly remember.  One in Germany when I was 14, I awoke with a tick attached to my arm near my elbow and hastily removed it myself.  Never considering anything more about it.  The second bite happened about 5 years ago while walking in a heavily wooded area in NC.   The 2nd time I was treated by my doc with 2 weeks of antibiotics; however, no followup was ever done.  I do remember though that my symptoms have been with me for years, literally years, so maybe fibro is the best diagnosis.  I do follow Dr. St. Armand’s protocol for fibromyalgia and this does seem to control 75% of my symptoms.  At this point though I will be, just as a precaution, asking my doc for a Western blot and ELISA testing just to dot all the i’s and cross all my t’s.  Fibro is no fun, but neither is Lyme so neither is exciting to think about.  However, Lyme does seem to have an possible ending if treated successfully with antibiotics, sadly fibro – not so much.

Anyway, I was listening intently to this discussion and Dr.  Cameron started to discuss how many of his patients can also be diagnosed first with ADD, ADHD, anxiety and depression – but all these symptoms can be a side effect of Lyme.  This is where it gets tricky, Lyme can look like so many other things, and so many other things can look like Lyme.  His argument was persuasive for at least exploring this diagnosis as a possibility.  Anyway, as with everything in America, contraversy and doubts/arguments for and against are rife.  Watching the movie “Under Our Skin” is probably the most eye-opening documentaries to show evidence of how intense these debates become, often to the detriment of the people who are just trying to get well again.

To learn more about Dr.  Cameron and his Lyme Disease Project click here. I urge you to read his page, and watch the movie (it was available on Netflix when I watched it) BEFORE approaching your doctor for any testing. Ensure you are aware of the facts and arguments you might encounter before getting any testing.  This will enable you to know which tests to ask for as the standard testing may not tell you all you need to know.  Taken from Dr. Cameron’s website: “They may have been told initially that they suffer from something else like multiple sclerosis, lupus, fibromyalgia, chronic fatigue or maybe from depression.  Yet, Lyme disease is the most common serious tick borne infection in the area that strikes our youth and adults. Symptoms can lead to severe fatigue, dizziness, sleep disturbances, headaches, chest and joint pain, nausea, diarrhea, and tingling arms and legs. The symptoms can even lead to psychiatric and neurologic problems including irritability, poor memory and concentration, anxiety, and crying.”

For personal stories and tons of other great resources and references see: Quick Guide To Lyme Co-infections.


Subscribe for the latest updates on our Journey Back to Health. What to expect when encephalitis becomes an unwelcome visitor in your home!

We promise to never sell, barter, share or trade your information, “Namaste”.

Subscribe to Our Newsletter