Our Journey to Healing
During the past 13 years, I have spent every waking moment (and many sleeping moments) thinking, doing and trying different treatments for the various letter disorders given to our children (we started with PDD-NOS then Autism and have changed or added acronyms 16 different times). We eventually settled on the idea that both children have encephalitis – is it still Autism, is it PANS triggered by LYME, Mold and other nefarious wee beasties? Is it PANDAS – is there strep? Is it Bipolar, ADHD, depression, trauma or are we are just in denial? I have spent years threatening to write a book titled “Dancing Naked Around Bonfires and Other Cures for Autism” because as we refused to let go of hope, it appeared that this may actually be the lengths we needed to go to, to help our children become well. This is our journey loving our kids through a spectrum of challenges to restore their health.
Entertaining kids with PANS? Entertaining kids with PANS, PANDAS or neuroimmune disorders can be a challenge like no other, our kids are notoriously difficult to please. As parents, most of us are always looking for ways of entertaining our child with PANS because we feel the need to get them out and enjoying life. The motivation […]
Many autoantibodies have been reported in children with autism spectrum disorder (ASD). Many of these autoantibodies interfere with brain function, resulting in the diagnosis of autoimmune encephalopathy (AIE). Identifying the particularly autoantibodies that cause AIE in ASD
The Foundation for Children With Neuroimmune Disorders has a fantastic line up of speakers this year, each adding to the discussion about what happens to our children’s neurology when their immune system goes awry (spoiler alert) …
How to End the Autism Epidemic J.B. Handley I am privileged and excited to be able to preview the groundbreaking book (How to End the Autism Epidemic) before it hits the shelves in the next day or two. While we have lived a life with autism and endured the confusion doctors have around autism and […]
This mold testing kit comes with clear instructions, as well as a moisture meter, a small compressor for the wall testing and most helpful of all, an hour-long consultation with someone who is a building biologist. Continue reading to see the results of our mold testing with ERMI and Conflict Free Mold.
Of course, this threw us right back into chaos, and our clinicians into scramble mode. Apparently, …
Proper identification of mold spores is important. Mold identification courses for amateurs have popped up throughout the country so it is difficult to know who knows what they’re doing without laboratory certification.
Preparing to send a child with PANS, PANDAS (Encephalitis) back to School can be a terrifying thought, but school begins exactly 4 weeks from now and we all want to be ready. My best advice for anyone going through this battle? Understand school is rough for a lot of kids, let alone a child with […]