Our Journey to Healing
During the past 13 years, I have spent every waking moment (and many sleeping moments) thinking, doing and trying different treatments for the various letter disorders given to our children (we started with PDD-NOS then Autism and have changed or added acronyms 16 different times). We eventually settled on the idea that both children have encephalitis – is it still Autism, is it PANS triggered by LYME, Mold and other nefarious wee beasties? Is it PANDAS – is there strep? Is it Bipolar, ADHD, depression, trauma or are we are just in denial? I have spent years threatening to write a book titled “Dancing Naked Around Bonfires and Other Cures for Autism” because as we refused to let go of hope, it appeared that this may actually be the lengths we needed to go to, to help our children become well. This is our journey loving our kids through a spectrum of challenges to restore their health.
The Foundation for Children With Neuroimmune Disorders has a fantastic line up of speakers this year, each adding to the discussion about what happens to our children’s neurology when their immune system goes awry (spoiler alert) …
How to End the Autism Epidemic J.B. Handley I am privileged and excited to be able to preview this groundbreaking book before it hits the shelves in the next day or two. While we have lived a life with autism for many years, we are now in a place where our child has recovered enough […]
This kit comes with clear instructions, a moisture meter, a small compressor for the wall testing and most helpful of all, an hour-long consultation with someone who understands what the results mean when they come back. It took a couple of weeks to receive the test, complete our part, then return all our samples via the prepaid label, then we had our consultation. It was all very simple and those results are also below.
Of course, this threw us right back into chaos, and our clinicians into scramble mode. Apparently, …
Proper identification of mold spores is important. Mold identification courses for amateurs have popped up throughout the country so it is difficult to know who knows what they’re doing without laboratory certification.
Preparing to send a child with PANS, PANDAS (Encephalitis) back to School can be a terrifying thought, but school begins exactly 4 weeks from now and we all want to be ready. My best advice for anyone going through this battle? Understand school is rough for a lot of kids, let alone a child with […]
Thank you to @ABC2020 for highlighting this condition and more so, thank you for the parents who allow themselves to be so vulnerable in order to recover their children. Parents and doctors highlight neurological disruption occurred after an infectious, bacterial or viral process in these children, these are their stories of fighting for recovery.
SUSPENDED, part 2… … “we saw the spiral and watched helplessly as he unraveled.” We didn’t just sit back and watch this, I started making phone calls as soon as the backsliding began. We recognized we were having more problems, we recognized we were losing ground and so started that mindless round of phone calls […]