IVIG the miracle cure? At everyone’s urging and our doctor’s blessing, we undertook 3 rounds of IVIG. Three very difficult infusions over the course of several months. One trip to the hospital with a migraine so bad the vomiting wouldn’t stop and a son crying in pain and wondering why he had to continue to […]
#Lyme #PANS #PANDAS #neuroimmune
Suspended Part 2
SUSPENDED, part 2… … “we saw the spiral and watched helplessly as he unraveled.” We didn’t just sit back and watch this, I started making phone calls as soon as the backsliding began. We recognized we were having more problems, we recognized we were losing ground and so started that mindless round of phone calls […]
Suspended From School
We had actually known for several weeks that B was unraveling. The medication we had done so well on had to be stopped, suspected of causing tremors in his arms and hands, so stepping down over a period of 12 weeks created some new challenges while causing some old issues to reappear. Specifically cognition, executive functioning, and decision making.
Mental Health in America
MENTAL HEALTH in America (and probably the rest of the world… my perspective) This week another mass shooting in a school by a child (almost adult) whose story is not yet fully known but already presumed mentally ill. The “he was different” conversations and the words “adoption, and fetal alcohol syndrome” have already been bounced […]
Advocating
Advocating for Better It boggles my mind, that we still have only have two major clinics treating our kids (at least publically) for this neuroimmune issue we have termed PANS and PANDAS, which begs the question – why? What is it about our kids that says to doctors and medical professionals “hmm, best not dig […]