PANS/PANDAS

Complex Medical Conditions and Bankruptcies

November 12, 2019 by Admin Leave a Comment

Medically Complex?

That Costs Money, a LOT of money

Everything costs money, we get that but when we look at complex medical conditions and bankruptcies, we know, having a chronic condition costs more money than most can imagine.

Everything has a price, everyone deserves to make a living, all should be compensated for their experience and genius. We understand and support these ideas, of course, this is America after all. But … (pity party warning trigger)

When you are faced with [Read more…] about Complex Medical Conditions and Bankruptcies

Entertaining kids with PANS

March 2, 2019 by Admin Leave a Comment

Boredom Is the Mother of Creativity – Entertaining kids with PANS!

Entertaining kids with PANS, PANDAS or neuroimmune disorders can be a challenge like no other, our kids are notoriously difficult to please. As parents, most of us are always looking for ways of entertaining our child with PANS because we feel the need to get them out and enjoying life. The motivation is more what WE want, having them engaged, and way less about what they want. We know from experience that [Read more…] about Entertaining kids with PANS

Dr Richard Frye Presents in this CME Series

February 15, 2019 by Admin Leave a Comment

Dr. Richard Frye Presents Understanding The Overlap of PANS and Autism –

An Overview of Research on Antineuronal Antibodies in Patients With Autism

Continuing Medical Education Credit (CME)

Unique Opportunity: Neuroimmune CME Series

January 8, 2019 by Admin Leave a Comment

Neuroimmune CME Series

This is truly a unique opportunity [Read more…] about Unique Opportunity: Neuroimmune CME Series

You thought medical insurance covered that?

August 2, 2018 by Admin 4 Comments

We thought medical insurance covered it too!

We went to an OCD Outpatient Treatment Program in Florida.

We have been out of state again for 5 long weeks now. We came to a program that was hopefully one more step in the recovery process from encephalitis. We chose to come here because in the spirit of the JCAP (Journal of Child and Adolescent Psychopharmacology) treatment guidelines, and knowing CBT therapy has already been positive, we believe this type of ongoing therapy has a place in our treatment program. Now we are this far along in our journey, we chose a very well established program for OCD, anxiety and mood disorders to reinforce some new coping skills.

This particular program has been here for many years and according to several of my friends, their success rates are pretty good. When we got here the behavior specialist took a few days to figure out where she would be going with the treatment. What were the triggers, was it OCD? Anxiety? etc. certainly nothing we haven’t heard before. This program is designed to be [Read more…] about You thought medical insurance covered that?