KETO DIETS AND GLUT1 MANAGEMENT What is Glut1? Currently, there are no medications that effectively enhance the transport of glucose into the brain for individuals with GLUT1 Deficiency Syndrome (GLUT1 DS). The primary treatment remains the ketogenic diet, which is highly effective due to its ability to provide an alternative energy source for the brain […]
psychological disorders in children
GLUT1 SLC2A1 Gene Mutation
GLUT1 SLC2A1 Gene Mutation – Mimicking ASD At 15 years old we finally realized that our child had a mutation on the SLC2A1 gene which resulted in a diagnosis of GLUT1 Deficiency Syndrome (GLUT1 DS). This is another allegedly rare genetic disorder that affects the brain’s ability to get enough energy from glucose, leading to […]
You thought medical insurance covered that?
The insurance company has had no direct contact with us to find out what the program is doing for us, they don’t know what we think, what we have done, where we have been, why we are here.
Day 43
Day 43 and we are still here. So we have just passed day 43 of what is technically an 84-day program. Sadly, we will be leaving around day 70-ish because school is back in session on August 17th. The students are returning earlier than usual because of something to do with the 2017 Solar eclipse. To […]
They call me warrior.
They Call Me A Warrior Mom In Facebook groups and chat sessions, parents of children with neuroimmune challenges refer to each other as warriors. After all, we found our way to these groups while fighting for our children’s health, looking for answers to restore their well-being. Each day thousands of parents are exchanging information, collecting […]