They Call Me A Warrior Mom In Facebook groups and chat sessions, parents of children with neuroimmune challenges refer to each other as warriors. After all, we found our way to these groups while fighting for our children’s health, looking for answers to restore their well-being. Each day thousands of parents are exchanging information, collecting […]
What happens in our downtime?
Being forced to spend 12 weeks in MA is not the worst thing that could happen. The beach and sun are good for everyone.
What a week!
What a week this has been! We arrived in Salisbury, MA., last Sunday after two arduous days driving from South Carolina. Saturday was gorgeous, Sunday not so much. Torrential rain fell almost the entire way. We snuck onto our campground right before the closing bell at 8 pm. The 13 hour and 16-minute drive turned into a […]
PANS, PANDAS and Lyme Disease – what’s the connection?
PANS, PANDAS & life after a diagnosis of Lyme Disease So in the 3 years since I put away my keyboard and started focusing on other things, a lot happened in our lives. In August 2014, when I wrote this post, I had no idea what was even possible for us going forward. We had […]
Options for IEP and 504 kids who are still failing…
Life for us is a mad scramble, every day the same but different. Again, other parents drop their kid at the school gates and kiss them goodbye until 3 pm; whereupon they pick up their dysregulated, tired but usually happy, child. I on the other hand drop my kid off at 8.20 and run home, […]