IVIG the miracle cure? At everyone’s urging and our doctor’s blessing, we undertook 3 rounds of IVIG. Three very difficult infusions over the course of several months. One trip to the hospital with a migraine so bad the vomiting wouldn’t stop and a son crying in pain and wondering why he had to continue to […]
PANS/PANDAS
Complex Medical Conditions and Bankruptcies
Medically complex conditions can make or break you. Bankruptcy or retirement? New car or new-old car? Pay this bill, not that one? Beg for payments, load up on credit cards, cash-out that, cash in this, sell that, borrow this, the tireless nature of medical complexity often depends on deep pockets…
Entertaining kids with PANS
Boredom Is the Mother of Creativity – Entertaining kids with PANS! Entertaining kids with PANS, PANDAS or neuroimmune disorders can be a challenge like no other, our kids are notoriously difficult to please. As parents, most of us are always looking for ways of entertaining our child with PANS because we feel the need to get […]
Dr Richard Frye Presents in this CME Series
Many autoantibodies have been reported in children with autism spectrum disorder (ASD). Many of these autoantibodies interfere with brain function, resulting in the diagnosis of autoimmune encephalopathy (AIE). Identifying the particularly autoantibodies that cause AIE in ASD
You thought medical insurance covered that?
The insurance company has had no direct contact with us to find out what the program is doing for us, they don’t know what we think, what we have done, where we have been, why we are here.