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Chronic Illness and Medical Mystery

Advocacy and Systems
LovingtheSpectrum

Suspended From School

We had actually known for several weeks that B was unraveling. The medication we had done so well on had to be stopped, suspected of causing tremors in his arms and hands, so stepping down over a period of 12 weeks created some new challenges while causing some old issues to reappear. Specifically cognition, executive functioning, and decision making. 

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Chronic Illness and Medical Mystery
LovingtheSpectrum

Life after treating Lyme

What’s life like after treating Lyme? January marks month 7 on Laser Lyme protocol. Where are we now? It’s been an interesting few months, new

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Chronic Illness and Medical Mystery
LovingtheSpectrum

How Many Times…

How many times … I had reason tonight to go back over a series of blog posts about a program we had completed in 2011.

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Chronic Illness and Medical Mystery
LovingtheSpectrum

Lyme Laser – Day 86

 Lyme Laser Treatment – Day 86 Maintaining at home Ideally, we would have only just been returning home from NE. This is a 12-week program

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Chronic Illness and Medical Mystery
LovingtheSpectrum

Interrupting regular programming…

TEN THINGS A NEWLY DIAGNOSED PANS/PANDAS PARENT NEEDS TO KNOW Interrupting regular programming to talk about chronic Lyme and PANS/PANDAS and Neuroimmune Diagnoses My children

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Chronic Illness and Medical Mystery
LovingtheSpectrum

New England Day 61

New England Day 61, Lyme Laser Treatment I am updating a little faster than is typical for my crazy hectic schedule simply because we finally

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Chronic Illness and Medical Mystery
LovingtheSpectrum

Things I learned in MA

Things I Learned in MA… or things we learned treating Lyme in Massachusetts. Thinking this trip through before we left I knew there were going

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Making the most of our trip
Chronic Illness and Medical Mystery
LovingtheSpectrum

Day 43

Day 43 and we are still here. So we have just passed day 43 of what is technically an 84-day program. Sadly, we will be

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Chronic Illness and Medical Mystery
LovingtheSpectrum

What a week!

What a week this has been! We arrived in Salisbury, MA., last Sunday after two arduous days driving from South Carolina. Saturday was gorgeous, Sunday not so

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