Suspended From School
We had actually known for several weeks that B was unraveling. The medication we had done so well on had to be stopped, suspected of causing tremors in his arms and hands, so stepping down over a period of 12 weeks created some new challenges while causing some old issues to reappear. Specifically cognition, executive functioning, and decision making.
Lyme Laser – Day 86
Lyme Laser Treatment – Day 86 Maintaining at home Ideally, we would have only just been returning home from NE. This is a 12-week program but as previously mentioned, we were forced to return home a full 1.5 weeks earlier than we should have. Initially, we figured missing those couple of weeks wasn’t a big […]
Returning home from Lyme Laser Treatment Centers of New England
Returning home from Lyme Laser Treatment Centers of New England Day 75 We have been home now for 5 days and I can honestly say the adjustment was slightly chaotic. We haven’t really unpacked yet but supplements still must be given on time, as per our previous schedule. It definitely has taken more than a […]
Interrupting regular programming…
TEN THINGS A NEWLY DIAGNOSED PANS/PANDAS PARENT NEEDS TO KNOW Interrupting regular programming to talk about chronic Lyme and PANS/PANDAS and Neuroimmune Diagnoses My children and I are in NE treating Lyme, this is true, but the chronic condition my children are diagnosed with is actually PANS (Pediatric Acute-Onset Neuropsychiatric Syndrome, OR as it has […]
Things I learned in MA
Things I Learned in MA… or things we learned treating Lyme in Massachusetts. Thinking this trip through before we left I knew there were going to be additional challenges over and above managing the kid’s behaviors and treatment compliance. First of all, I am scared of the dark, secondly, I am afraid to be alone […]